I feel good, I feel great, I feel wonderful... I feel good, I feel great, I feel wonderful...

My sister always got the biggest hoot out of the movie What About Bob? so I'm applying some Bob Wiley coping techniques since it has been a rough few days. First, I'll warn you that this isn't going to be a happy post. I want this space to be positive and something I can look back on to remember stories but it also needs to be realistic. I remember reading another patient blog where he wrote about some downfalls and I'm relating to that now, so maybe someone else can relate to this situation in the future.

Wednesday was when they had put my new swan in. It went fine and I had the usual schedule of pain, take pain meds, take anti-nausea meds because of the pain meds and lay in bed all day. I ended up vomiting anyway but I'd still say it wasn't a horrible day. Next day I felt tired but otherwise fine and ate, walked and did all my normal nursing home-esque activities. A few people made comments that I looked really tired and my face looked gray or blue but that isn't super unusual for me! That night I ended up spiking a fever and endured all the lovely symptoms that go along with it.

There are a lot of little details that I'm going to omit that made the weekend pretty dreadful. Basically, they think I had a line infection so they pulled my swan that was just put in along with another port which resulted in me bumping down to a 1B status on the transplant list while swan-less. There was also a whole ton of tests, new IV's, new meds, questions from the infectious disease team, no sleep, no appetite and eventually me sobbing at random times around strangers and/or really awkward people that didn't know what to do.

The swan free weekend of being allowed to pee in the bathroom, take a shower, and walk around freely was a bust because I was too nauseous to do most of that. In the medical world all of this really isn't uncommon or a big deal but I'm starting to lose my sh#t! Thankfully I'm slowly feeling better and did manage to sleep last night and I ate today.

Good news is that I'm a 1A again (since yesterday) and no matching hearts came through over the weekend, so I didn't miss out.

The other news is that my two pet sons met on Sunday. Looks like they hit it off, yeah?